NI Rare Disease Partnership

The Northern Ireland Rare Disease Partnership (NIRDP) are thrilled to introduce their newly devised education and upskilling programme, “Understanding Rare”. This initiative is designed to foster a deeper understanding and empathy towards the unique needs of the 1 in 17/110K individuals (many of which are children) living with rare diseases or conditions in Northern Ireland, and many of whom experience acute mental health/financial/work/housing or isolation needs alongside carers or family members who are also experiencing these challenges. Some of these “Rare Stories” can be found here

NIRDP understand that mental health providers and Helplines NI (of which we are also a member) play a pivotal role in offering support and guidance to these individuals. Therefore, we have crafted a free 1.5-hour remote learning Continuing Professional Development (CPD) session that aims to equip mental health or helpline and support staff with the necessary knowledge and skills to address their needs more effectively.

Through this short programme, participants will be better prepared to:

  • Understand the complex needs of those with rare diseases in our community.
  • Empathise with their unique challenges and experiences through the sharing of Rare Stories
  • Signpost more successfully to organisations like the NIRDP or other rare condition organisations, facilitating a network of comprehensive support.

NIRDP are pleased to inform you that this initiative is generously funded by the Community Foundation/DOH in Northern Ireland, a testament to the significance and potential impact of this programme. We kindly then encourage you to share this invaluable opportunity with your staff, colleagues, and those in your organisation responsible for supporting CPD initiatives. For further information or to express your interest, please do not hesitate to contact us directly or share this email with colleagues within or beyond your own organisation that may find this matter of interest, especially in training or HR departments.

 

 

CCP Regional Conference: Caring for yourself and others – Nurturing connections for wellness

Working with young children is acknowledged as being challenging both physically and psychologically. Even so, Early Years Educators demonstrate very high commitment to the children in their care. However, you cannot pour from an empty cup, and in this Keynote Mary explains the impact of stress on our lives, and looks at how Educators can support their own wellbeing and avoid burnout. Participants will also have the opportunity to attend 2 of 3 workshops, details of all workshops are on page 2.

Download Conference Flyer 

Conference details: 
Date: Thursday 29th February 2024
Time: Registration from 9am, the conference will take place 9.30am – 3pm
Venue: Tullyglass Hotel, Ballymena

 

Safer Internet Day 2024

Safer Internet Day 2024 takes places on 6th February with the theme of ‘Inspiring Change?  Making a Difference, Managing Influence and Navigating Change Online’.  The online world is a fast moving space with a host of new and emerging trends.  For practitioners, parents and carers who have responsibility for children and young people, it is often hard to keep up as well as understand the impact of technology and where the risks might be.

This year, the Western and Northern Trust Digital Safeguarding Steering Groups have partnered up to host a range of masterclasses focusing on these online issues and concerns so that we help practitioners promote safe, responsible and positive use of digital technology for children, young people and their families.

Delivered by a range of experts from across the region and the UK, the workshops will explore:

  • Technology assisted abuse
  • Incels – what they are and how to support young people
  • Online sexual abuse, sextortion and sexploitation
  • Young people and pornography
  • Supporting vulnerable young people online
  • Key messages for practitioners so they can support and advise young people and their families

Full details including Eventbrite booking information are in the flyer below.

Safer Internet Day Feb 2024

Please note for the Technology Assisted Abuse session, all HSC staff can register via LearnHSCNI (linked on brochure). For non HSC staff, please complete booking form below.

Technology Assisted Abuse Booking Form

For more information about Safer Internet Day, click here

 

Western Area FYI – Issue 2

Happy New Year!
Welcome to the second issue of FYI, your monthly round up of all things family support and early intervention/ prevention.
If you would like to contribute upcoming consultations, training, articles, or events that practitioners from the community, voluntary or statutory sectors within the Western Trust will find useful please contact;

Dr Priscilla Magee Mobile 07880723076
priscilla.magee@westerntrust.hscni.net 
Paul Sweeney
Mobile 07387259117
paul.sweeney@westerntrust.hscni.net

Western Area FYI – Issue 2

How are Children and Young People Doing in Northern Ireland?

We have just published our NI outcome monitoring report 2021 full of multi-agency population/census data. Download your copy now at tinyurl.com/bdhfun6c This is a great resource for assessing need, planning & evidence for funding opportunities.

 

This 11th Outcome Monitoring Report shows how children and young people in Northern Ireland are doing in relation to the Government’s eight outcomes and covers the period 2015 up to 2022 (where available) The report presents the information collected against agreed indicators for each outcome, providing trend analysis over time and comparison across geographical sectors.

This report will be kept as a live report under the publications page on the CYPSP website with information being updated as it becomes available we have highlighted in the index  where we are still awaiting data.